Pre-Treatment Information on Dysphagia: Exploring the Views of Head and Neck Cancer PatientsAbstractContext
Swallowing
difficulties (dysphagia) are a common acute and chronic side effect of
head and neck cancer treatment. Dysphagia is associated with medical
concerns such as malnutrition and pulmonary health as well as quality of
life outcomes. Providing information on the likely changes to
swallowing is an important component of pre-treatment preparation. There
is little research providing the patients’ perspective in this area.
Objectives
This
is a qualitative study to describe patients’ views on pre-treatment
information regarding changes to eating, drinking and swallowing
following chemoradiotherapy treatment for head and neck cancer.
Methods
A
purposive sample of 24 head and neck cancer patients with a range of
post-treatment dysphagia severity, up to two years following
chemoradiotherapy, was selected to participate in focus groups or
semi-structured interviews. Thematic analysis was conducted by two
researchers and results were verified with three participants.
Results
Half
of the participants presented with mild dysphagia, with the remainder
having moderate to severe dysphagia.
Mean age was 59 years, mean time
post-treatment was 10 months.
Data were grouped into three main themes
and subthemes: expectations about treatment outcomes and whether
information correlated with pre-treatment information; presentation of
information, including the format and delivery; and the difficulties
with absorption and retention of information.
Conclusion
Patients
require information on the impact and prognosis for their swallowing
ability.
There was a general preference for verbal information, from
someone knowledgeable about dysphagia. However, there are also
individual preferences for the manner and pace at which this information
is delivered.
Further research is indicated to explore ways of
providing information that is individually tailored to patients’ needs
and preferences.
Key Words: Head and neck cancer, swallowing, dysphagia, pre-treatment, qualitative
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UNITE DES SOINS PALLIATIFS
Zahle et Bekaa. LIBAN
PALLIATIVE CARE UNIT
Zahle and Bekaa. LEBANON
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Sunday, June 15, 2014
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